The concept of healing has always fascinated me, and I suppose all the more since I have become painstakingly aware of my own chronic pain post-concussion. Envisioning my future without pain hasn’t been a difficult thing for me, but I would always imagine it after a sudden and miraculous event of instant physical healing, like something from a fairytale.Read More
When you are first diagnosed it can be a moment of relief because you now know that you weren’t making it up and there is no longer an “unknown” factor. The truth is it’s only a label. Just because you have a name for it doesn’t mean there is a treatment, or anything else is known about it.Read More
Living with Central Pain Syndrome for the past eleven years has taught me so many things. I truly am more grateful for every ability and every breath I breathe than ever before. But somewhere along the lines as I was learning to be as kind to myself as I would be to others around me, I realized that there is more to taking care of myself than just having a daily regimen that included a oil and salt filled bubble bath with ice water before bed.Read More
We all have that one friend or family member (sometimes multiple) that are always negative and continually try to bring us down. Maybe it’s a friend you have had in your life since you were little. Or maybe it’s someone in your immediate family such as a grandparent, aunt, sibling, uncle or even a parent.Read More
Comparing yourself, your progress, or your lack of progress with other people’s is a surefire way to multiply discouragement and depression in your life. We often do it without even realizing what we’re doing. In today’s world of perceived or curated happiness thanks to how we often use the internet, it can be so easy to compare what we know to be true of our inner most darkest thoughts and pains with the polished and filtered display of our friends and acquaintances.Read More
I don’t know about any of you, but I think that the term victim needs to be erased and replaced with the term warrior. Victim and warrior can be considered the same depending on how you think about it. I guess you could say it’s like the glass half full or half empty notion.
I don’t blame people for using the word victim; we have been trained our whole lives to call people victims when something bad happens. When you hear the term victim it sounds like they are powerless when in reality no one is powerless.Read More
To me, progress is simple things like learning how to embrace the cards you were dealt with and figure the ropes around managing your thoughts and your daily therapeutic treatments, even if you’re just barely hanging on to the potential of future hope.Read More
“You don’t look sick.”
“Thank you and you don’t look stupid.”
I might look healthy on the outside, but that doesn’t mean I am healthy on the inside. I might not have a broken bone, I may not have lost a limb, but I am still sick.Read More
This week I have a simplified compilation of one liners to share with you. These statements have kept me going many days and have been a huge encouragement to me through the long years of CPS pain.
Life with chronic pain, near death experiences and lessons learned:
Resist the impulse of helplessness.
Never let familiarity steal your ability to absorb.Read More
Being in constant pain can be detrimental to our emotional and mental well-being. Sometimes I feel that I shouldn’t be sad and I think to myself, “when is enough actually enough?”Read More
"That's why you can never relax . . . you feel guilty if you think you're wasting time." -Wayne Jacobsen
This quote has been blowing my mind and is having me rethink what a waste of time is and what a necessary part of a process is. I'll be honest, I've felt guilty about not being nearly as productive as I'd like to be while having CPS.Read More
Just because you are constantly hurting doesn’t mean you can’t follow your dreams. Being in pain 24/7 can be destructive to a person’s physical, mental, or emotional health. It helps to have goals or something that makes you excited. Life can be a roller coaster with things changing constantly.Read More
Celebrate progress, no matter how fast or slow the pace.
Each of us is on our own journey to health and wholeness, no matter how bumpy the road looks along the way. I have found that one of the best things you can give a person is the prerogative to their own process in their own timing.Read More
Everyone has been asked to rate their pain on a scale from 1-10 whether you have chronic pain, or you just fell. When you are asked the first time you basically know what number to choose, but really it is all subjective.Read More
I was that person who would "never be able to do that".
Never be able to not pass out from getting my blood drawn, never be able to handle being massaged or adjusted, never be able to get shots, or give shots, or even look at a needle for that matter. Never be able to go under anesthesia for surgery and never be able to wait long hours for a pain to come and go.Read More
“Ugh, I feel so old”, said a 20-year old.
That statement can be heard from many young adults, this writer included. I have heard many people say, “Oh quit complaining, you are so young” or, “Oh to be young again” and even, “When I was your age…” …get the picture?Read More
Like the foggy weather, it seemed to blow in from nowhere.
I couldn't think of words I wanted to say. I knew what I wanted to say, but it felt like there was a disconnect from my brain to my mouth.Read More
Sometimes everything falling apart is the best thing that can happen to you.
I wish I could paint a picture with my words to adequately describe life with chronic pain and a “life sentence” diagnosis. We are not the words that doctors use to explain our conditions. We believe it wasn't supposed to be like this. We are told that we are beautiful and normal looking and friends who haven't seen us for many months think we are doing and looking great.Read More
Dear Loved Ones,
Thank you for being with us through our bad days, our even worse days and the sparingly good moments. The day to day grind of just getting through the day can be so overwhelming that we forget how hard it can be for our loved ones. We may not thank you enough out loud, but we so appreciate everything you do for us.Read More
It's a fabulous sunny day here in beautiful British Columbia, Canada, and I'm feeling in pretty good spirits because it's a low pain day for me.
For this week's blog post I thought I would share some of the insights I've gained from my own experience with Central Pain Syndrome.Read More