When Healing Seems Impossible

The concept of healing has always fascinated me, and I suppose all the more since I have become painstakingly aware of my own chronic pain post-concussion. Envisioning my future without pain hasn’t been a difficult thing for me, but I would always imagine it after a sudden and miraculous event of instant physical healing, like something from a fairytale.

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Kelsey Rein
Fears For the Future With Chronic Pain

When you are first diagnosed it can be a moment of relief because you now know that you weren’t making it up and there is no longer an “unknown” factor. The truth is it’s only a label. Just because you have a name for it doesn’t mean there is a treatment, or anything else is known about it.

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Alexa Randolph
Self Care Is More Than Bubble Baths

Living with Central Pain Syndrome for the past eleven years has taught me so many things. I truly am more grateful for every ability and every breath I breathe than ever before. But somewhere along the lines as I was learning to be as kind to myself as I would be to others around me, I realized that there is more to taking care of myself than just having a daily regimen that included a oil and salt filled bubble bath with ice water before bed.

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Kelsey Rein
Why Comparison Only Hurts You More

Comparing yourself, your progress, or your lack of progress with other people’s is a surefire way to multiply discouragement and depression in your life. We often do it without even realizing what we’re doing. In today’s world of perceived or curated happiness thanks to how we often use the internet, it can be so easy to compare what we know to be true of our inner most darkest thoughts and pains with the polished and filtered display of our friends and acquaintances.

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The Term Victim Shouldn’t Exist

I don’t know about any of you, but I think that the term victim needs to be erased and replaced with the term warrior. Victim and warrior can be considered the same depending on how you think about it. I guess you could say it’s like the glass half full or half empty notion.

I don’t blame people for using the word victim; we have been trained our whole lives to call people victims when something bad happens. When you hear the term victim it sounds like they are powerless when in reality no one is powerless.

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One Liners For When Life Gets You Down

This week I have a simplified compilation of one liners to share with you. These statements have kept me going many days and have been a huge encouragement to me through the long years of CPS pain.

Life with chronic pain, near death experiences and lessons learned:

Resist the impulse of helplessness.

Never let familiarity steal your ability to absorb.

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Never Say Never

I was that person who would "never be able to do that".

Never be able to not pass out from getting my blood drawn, never be able to handle being massaged or adjusted, never be able to get shots, or give shots, or even look at a needle for that matter. Never be able to go under anesthesia for surgery and never be able to wait long hours for a pain to come and go.

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Kelsey Rein
How Chronic Pain Ages You

“Ugh, I feel so old”, said a 20-year old.

That statement can be heard from many young adults, this writer included. I have heard many people say, “Oh quit complaining, you are so young” or, “Oh to be young again” and even, “When I was your age…” …get the picture?

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Sentenced To Live

Sometimes everything falling apart is the best thing that can happen to you.

I wish I could paint a picture with my words to adequately describe life with chronic pain and a “life sentence” diagnosis. We are not the words that doctors use to explain our conditions. We believe it wasn't supposed to be like this. We are told that we are beautiful and normal looking and friends who haven't seen us for many months think we are doing and looking great.

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To Our Loved Ones... Thank you

Dear Loved Ones,

Thank you.

Thank you for being with us through our bad days, our even worse days and the sparingly good moments. The day to day grind of just getting through the day can be so overwhelming that we forget how hard it can be for our loved ones. We may not thank you enough out loud, but we so appreciate everything you do for us.

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