Posts in Central Pain Syndrome
The Term Victim Shouldn’t Exist

I don’t know about any of you, but I think that the term victim needs to be erased and replaced with the term warrior. Victim and warrior can be considered the same depending on how you think about it. I guess you could say it’s like the glass half full or half empty notion.

I don’t blame people for using the word victim; we have been trained our whole lives to call people victims when something bad happens. When you hear the term victim it sounds like they are powerless when in reality no one is powerless.

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One Liners For When Life Gets You Down

This week I have a simplified compilation of one liners to share with you. These statements have kept me going many days and have been a huge encouragement to me through the long years of CPS pain.

Life with chronic pain, near death experiences and lessons learned:

Resist the impulse of helplessness.

Never let familiarity steal your ability to absorb.

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How Chronic Pain Ages You

“Ugh, I feel so old”, said a 20-year old.

That statement can be heard from many young adults, this writer included. I have heard many people say, “Oh quit complaining, you are so young” or, “Oh to be young again” and even, “When I was your age…” …get the picture?

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Sentenced To Live

Sometimes everything falling apart is the best thing that can happen to you.

I wish I could paint a picture with my words to adequately describe life with chronic pain and a “life sentence” diagnosis. We are not the words that doctors use to explain our conditions. We believe it wasn't supposed to be like this. We are told that we are beautiful and normal looking and friends who haven't seen us for many months think we are doing and looking great.

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To Our Loved Ones... Thank you

Dear Loved Ones,

Thank you.

Thank you for being with us through our bad days, our even worse days and the sparingly good moments. The day to day grind of just getting through the day can be so overwhelming that we forget how hard it can be for our loved ones. We may not thank you enough out loud, but we so appreciate everything you do for us.

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It's Time to Shine a Light on Chronic Pain

When you are constantly in pain to the point that you would rather cut off every limb because it would probably be less painful, the last thing you want to hear is, “it’s in your head, move on with your life” or, “you don’t look sick.” It can be detrimental to your mental health and well being to constantly feel that you aren’t being believed.

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How To Embrace Body Image Insecurity Surrounding Chronic Illness

Ever since I was a little girl, I was picked on and called names like string bean, daddy long legs, shrimp or toothpick. I remember feeling more sorry for the people feeling the need to call me these things than I did for myself. I was happy with my body. I was a strong athlete in gymnastics, tennis, and dressage. I used my skinniness to my advantage to reach under sofas, sleep under my own bed frame, dart between crowds and reach to the high cabinet. 

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